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Parents with disabilities and their children encounter significant economic hardships, including unstable housing, food insecurity, and difficulty paying their bills. This study outlines ways that researchers, policymakers, and program coordinators can develop programs and supports for low-income parents with disabilities and their families.
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This webpage offers advice from parents with disabilities for professionals who work with parents on the autism spectrum, parents with intellectual disabilities, mothers with disabilities, and pregnant women with disabilities.
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This online resource provides an overview of developmental disabilities, along with guides for tracking developmental milestones in children and tips for what actions to take if you are concerned about your child’s development.
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If you are a family member who cares for someone with a disability, whether a child or an adult, combining personal, caregiving, and everyday needs can be challenging. This webpage provides information to help family caregivers, and those they care for, stay safe and healthy.
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This toolkit offers information to parents with disabilities around various aspects of parenting including tips for navigating the child welfare system, adoption and foster care, and child custody.
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Preparation is essential for disclosing your disability. Effective disclosure requires that you discuss your needs and that you provide practical suggestions for reasonable job accommodations if they are needed. One way to become comfortable with discussing your disability is to find someone you trust and practice the disclosure discussion with that person. The two of you can put together a disclosure script. It should contain relevant disability information and weave in your strengths. Always keep it positive! Continue reading for additional tips about disclosing your disability status at…
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Transitions are tough. As many schools make plans to shift from distance learning to in-person instruction, families, students, and educators face an adjustment period. That’s especially true for students with autism spectrum disorder because transitions can be particularly stressful and challenging for them. This article contains tips and resources to help children with autism return to the classroom.
This guide is intended to help both family members and healthcare professionals who are working together to improve care for children with special healthcare needs. Joining together in multi-disciplinary teams, family members and providers are increasingly working as equal partners to improve care. Collaborating as equals may be new for family members and providers. This guide includes information and guidance on how to get the most out of this potentially powerful partnership. (Author abstract)
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Families with a child who has a disability have special concerns and often need a great deal of information: information about the disability of their child, about early intervention (for babies and toddlers), school services (for school-aged children), therapy, local policies, transportation, and much more. Fortunately, there’s help available, because every State has at least one Parent Training and Information Center (PTI) to offer families just this kind of information. Many States also have a Community Parent Resource Center (CPRC), which offers the same type of support and training to…
Every parent dreams of having a happy, healthy child. What happens when these dreams are shattered by a physical or cognitive disability? A Different Kind of Perfect offers comfort, consolation, and wisdom from parents who have been there—and are finding their way through. The writings collected here are grouped into chapters reflecting the progressive stages of many parents' emotional journeys, starting with grief, denial, and anger and moving towards acceptance, empowerment, laughter, and even joy. Each chapter opens with an introduction by Neil Nicoll, a child and family psychologist who…
